Receiving a cancer diagnosis can be a huge shock, which will lead to you feeling lots of different emotions. Many people feel completely overwhelmed but it is important to understand there are lots of different people and services who can help support you and your family.
Going through cancer treatment is a very personal thing and what is needed will vary depending on many factors.
You will meet a lot of different professionals who will all play a part in your diagnostic and treatment pathways.
Your key worker is the main point of contact in your health care team and therefore one of the most important people in the team to you. This is often a clinical nurse specialist or a member of their specialist team. Their name and contact details should be given to you when you receive a cancer diagnosis, it may even be given before then. If you do not have a key worker, the next time you attend or contact the hospital you should ask who your key worker is and how you can contact them.
In the hospital there is a group of professions that will help manage your care. This is called a multidisciplinary team, often shortened to MDT.
Depending on the type of cancer and how it is treated, this may include:
Your GP may the person who referred you to the hospital in the first place. The hospital teams will communicate with your GP and they will have knowledge of any plans that have been developed about your treatment and/or support care. Your GP will work closely with other members of the teams such as community specialist and district nurses to help manage your healthcare whilst you are at home.
You should look to your GP to:
You may feel your GP is too busy to help you. If you have any symptoms that need supporting or wish to discuss anything from the list above, this is a legitimate use of their time. Your GP will appreciate you going to see them and importantly it will enable them to further understand what your issues are, this will make it easier for them to support you when your condition needs it.
There are also other health care professionals who may provide support and care, these individuals may work in the community or hospital setting:
Whether you are seeing your consultant, a nurse or any other professional at the hospital it is important that you get the most out of your appointment. People often say they forget parts of what has been discussed during the consultation. This is because there is often lots of new information to take in using many words and terms that you may not be familiar with. Here are some hints and tips to enable you to get the most out of your appointment.
Plan your questions - write them down and don't be afraid to get your piece of paper or note pad out during your appointment.
Write and keep notes - during the consultation don't be afraid to write down the important parts of the conversation.
Ask the doctor or nurse to provide you with a brief written summary of the consultation. This will only cover the key points discussed in the consultation but will provide you with notes that will help prompt your memory. If the doctor or nurse are writing to let your GP know about the consultation you can request a copy of the letter.
Record the conversation on your smart phone. You will need to ask the permission of the professional you are seeing but an increasing number of people are now using their mobile phones to record the consultation.
Ask a friend or family member to come with you. Two minds are better than one and you will both remember different parts of the consultation. If you both write down what you feel are the important parts of the appointment, there will be two sets of notes to refer to after the appointment.
Don't feel you have to ask everything at once. There will be a number of chances to ask questions of different members of the team.
And finally, remember that professionals are there to help. They are likely to have supported people with similar issues before, even if you feel it is a subject you may find embarrassing to talk about.