Patients Know Best - frequently asked questions

Patients Know Best

How do I get access to Patients Know Best (PKB)?

If you have been a patient at The Mid Yorkshire Hospitals NHS Trust in the last 12 months, you will receive an invitation to register for PKB by either email, SMS text message or posted letter. This invitation will include invite and access codes that you will need to complete registration. Once you receive your invite to register with PKB, visit www.joinpkb.com. You can also watch this video about registering with PKB.

Where can I find help with using PKB?

You can access the Patients Know Best Help Manual at manual.patientsknowbest.com. This provides a whole host of useful information about how to use PKB.

Where do I log in to PKB?

To log in to PKB, visit my.patientsknowbest.com.

What devices can I use to log in?

You can access your PKB record from any smartphone, tablet or desktop device. There’s no need to update your device or install new software. Simply use your web browser to log in at my.patientsknowbest.com. However, either you (or your carer) will need regular internet access to receive your correspondence and to access all the features.

Will this affect my care?

No, this will not affect the care you already receive from us. Instead, it’s designed to improve your care and experience, help you to be more involved in decisions, get better explanations from us and give you the tools to manage your care safely at home.

By sharing your appointment letters with PKB, it also means we can save money on postage and allocate this funding where it’s most needed.

Is the system secure and how can I be sure my information won’t be shared or sold?

Patients Know Best is hosted within the NHS network, so it’s just as secure as the information we as a hospital hold about you. We chose this system because it meets the stringent NHS requirements for health record systems and is fully compliant with the Data Protection Legislation 2018. All personal and health information is encrypted (or coded), with PKB only having access to your NHS number. This means only you and the people you choose can access your health information.

Can I ask a carer or family member to register on my behalf?

Yes, family members and carers can, with your consent, register on your behalf. However, they should not use their own email account to do this. If you want the family member or carer to have access to your record they can be added in the “sharing” section. This will allow them to set up their own account and allow you to control the level of access they have to your record.

Can children register for PKB or can I have access to my child’s record?

Currently it is not possible for children under 16 to register for PKB or for parents or carers to be given access to a child’s record. However, we are working on developing a process to allow children to register which includes a parent or carer also having access. To enable this, we need to ensure that we provide appropriate designated access including authentication of the relationship between the parent or carer and the child.

Why is my record empty?

We are unable to add any information until you have registered. Once you have registered, your correspondence will start to become available. In the meantime, you can add your own information, such as tracking your symptoms or recording any allergies or medication you take.

Does it cost me anything?

No, there are no costs to you as a patient as the service is funded by Mid Yorks. We will recoup the costs through a reduction in paper and postage expenses as a result of correspondence being sent to you digitally.

I’m having technical problems. Who should I contact?

Please email PKB directly at help@patientsknowbest.com. You only need to provide your name, the name of the organisation that created your account (i.e. this hospital) and a summary of the problem(s) you have encountered.